Tour of Europe in 2019 for aphasia and stroke
For about a year now, they have had a project that started from their common desire for discovery and adventure. Yes, but not without purpose. For them, it is a question of testifying to their life accidents, to the existing possibilities of prevention and therapeutic management of these very disabling accidents and to the urgent need to re-educate themselves by using all the current data from neuroscience, even if it is at the cost of immense energy.
He wants to meet with associations of people affected by aphasia and stroke and aphasia. Exchange, dialogue, improve care, rehabilitation, support for carers and victims. In France, where do we stand in relation to our European friends? Isn't Europe not made for exchange and dialogue?
As a doctor, his objectives are first prevention and then rehabilitation. His profession is the therapeutic education of his patients first and foremost. So she can and wishes to use what has happened to her to inform and prevent risks, so many and so unknown.
She was fortunate to be cared for in a rehabilitation centre that is unique in France and Europe, which develops neuro-reeducation based on self-reeducation with physiotherapists.
The principles to summarize: self-rehabilitation
- Pulling a muscle;
- Active movements to recreate lost neural connections;
- Stretching sequence at maximum load-active movements of maximum intensity.
This is based on the principle of brain plasticity. She would like to help other motivated people who would be happy to work to try to recover: "who doesn't try anything has nothing". After a stroke, life is not over.
Their ideas therefore complement each other in two ways:
- One related to communication and exchange of good practices to help people with and without disabilities affected by stroke;
- Disseminate the principle of self-rehabilitation, which is innovative, promising and yet so little used in France and Europe due to a lack of information.
They want to travel through France and Europe. What could be better than a van? Yes, a van, a little special because he uses his left arm and she uses his right arm, for the moment. They need to arrange their vehicle: a ball at the wheel with indicators that would be removable depending on the driver. One needs a pedal on the left of the acceleration, also removable. I forgot the van obviously has to have an automatic gearbox.
The objectives of the project
Ten countries visited: France, Belgium, England, Switzerland, Germany, Poland, Spain, Portugal, Italy
8000 km to go
Conferences in Paris, London, Germany, Switzerland, etc.
Meetings in the various European countries to address disability, rehabilitation, employment and Europe
- Objective 1: 2000 euros for petrol and video to show the trip, interviews and countries we will visit
- Objective 2: 3000 euros for food
- Documentary on Stroke and Travel
They will make a documentary with their own videos and interviews with people and themselves.
- Book or report of proposals or guide to good practice
They will write a book and a report of the questionnaire proposals. They will have possible improvements in their meeting.
You can put as much as you want even more than 2000 euros
Victim of stroke and aphasia - Rehabilitation - Van trips - Conference - Europe - Disability policy